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We ve been in and out of hospitals and doctors offices since he was three months old. And if it seems that the rest of my life is all i talk about sometimes it s because it can be hard to talk about my son. Only i understand jacob s unique makeup and challenges. So maybe that leads me to the last thing you don t know about a special needs parent. Raising a special needs child has changed my life. Sometimes i just mourn inside for jacob it s not fair.
When i see a 1 year old baby do what my son can t at 4 years old like walk i feel a pang of jealousy. But i m just like the next mom in some ways. It s a hard one for me to come out and say but it s true. Don t get me wrong i understand and share their wishes for healthy babies in every birth but it s become such a thoughtless mantra during pregnancy that it can feel like a wish against what my son is. My son is the most awe inspiring thing to happen to my life. Sometimes when i m having a rough day or have been made aware of yet another health or developmental issue i might not say much.
As a special needs parent i often don t share my feelings on this aspect of my life even with my closest friends so i decided to compile a list here with the goal of building understanding i was largely inspired by this beautiful post authored by another parent to a child with a chromosomal disorder . But often it s very hard for me to be around typical kids with him. But now whenever i hear them i feel a pang of hurt.One thing i always appreciate is whenever people ask me a more specific question about my son like how did jacob like the zoo. I travel dance am working on a novel love good food talk about dating.